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Albinism In Africa

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Albinism in Africa

Albinism in Africa Book
Author : Jennifer Kromberg,Prashiela Manga
Publisher : Academic Press
Release : 2018-01-02
ISBN : 0128133171
Language : En, Es, Fr & De

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Book Description :

Albinism in Africa: Historical, Geographic, Medical, Genetic, and Psychosocial Aspects provides the first in-depth reference for understanding and treating patients of human albinism in Africa. Leading international contributors examine the historical, geographic, psychosocial, genetic and molecular considerations of importance in effectively and sensitively managing this genetic disorder. Foundational chapters covering the historical and psychosocial aspects of albinism are supplemented by discussions of the pathobiology of the disease, as well as a thorough analysis of the genetics of skin pigmentation, eye pigmentation, hair pigmentation, and incidents of skin cancer involved in the manifestations of this disorder. New prenatal diagnostics and genetic testing methods, genetic risk assessment for individuals, families, and communities, and novel genetic markers that may be used for developing new therapeutics for treating albinism are also discussed in detail. The book provides care management approaches that may be applied to instances of albinism in other regions, along with guiding principles for treating rare genetic disorders and stigmatized patient populations across the globe. Includes contributions from leading international contributors who examine the historical, geographic, psychosocial, genetic and molecular aspects of importance in sensitively managing albinism in Africa Discusses recent advances in our understanding of the pathobiology of albinism, while also offering a thorough analysis of the genetics of skin pigmentation, eye pigmentation, hair pigmentation, and rates of skin cancer Highlights new prenatal diagnostics and genetic testing methods and approaches to genetic risk assessment for individuals, families and communities

African Philosophy and the Otherness of Albinism

African Philosophy and the Otherness of Albinism Book
Author : Elvis Imafidon
Publisher : Routledge
Release : 2018-10-30
ISBN : 0429813112
Language : En, Es, Fr & De

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Book Description :

Albinism is one of the foremost disability and public health issues in Africa today. It often makes headlines in local, national and international medias and forms the basis for intense advocacy at all levels. This is primarily due to the harmful representations of persons with albinism deeply entrenched in African traditions. These deeply rooted ideologies about albinism in African thought have largely promoted the continuous discrimination, stigmatization, harming, killing, commodification and violation of the human rights of persons with albinism in African places. How has albinism emerged as a thick concept in African traditions? What are these deeply entrenched ideas about the ontology of albinism in African thought? What epistemic injustice has been done to persons with albinism in Africa places? Why do harmful beliefs about albinism still persist in modern African societies? How does the African communalistic ethic justify the harm done against persons with albinism? What is the duty to, and burden of, care for persons with albinism? What peculiar existential challenges do persons with albinism in general and females with albinism in particular face in African societies and how can they be overcome? What can be learnt from the education philosophy of reconstructionism and genetic engineering in improving the wellbeing of persons with albinism? African Philosophy and the Otherness of Albinism: White Skin, Black Race digs deep into these philosophical questions revealing fascinating but latent aspects of how albinism is understood in African places as a necessary step to take in improving the wellbeing and integrity of persons with albinism in Africa today. This book will be of interest to scholars and students of African philosophy, sociology, African studies and disability studies.

Golden Boy

Golden Boy Book
Author : Tara Sullivan
Publisher : Penguin
Release : 2013-06-27
ISBN : 1101603321
Language : En, Es, Fr & De

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Book Description :

“Harrowing but ultimately redemptive…the murder of Tanzania's albinos is a real and horrific phenomenon of the past 15 years, a cold fact that makes the fictional events in ‘Golden Boy’ more moving and consequential than those in any dystopian young-adult chase-drama.” —The Wall Street Journal *"A riveting snapshot of one Tanzanian boy who makes himself matter." —Kirkus Reviews, starred review *“Readers will be haunted by Habo’s voice as he seeks a place of dignity and respect in society. An important and affecting story.” —School Library Journal, starred review Thirteen-year-old Habo has always been different—light eyes, yellow hair and white skin. Not the good brown skin his family has and not the white skin of tourists. Habo is strange and alone. His father, unable to accept Habo, abandons the family; his mother can scarcely look at him. His brothers are cruel and the other children never invite him to play. Only his sister Asu loves him well. But even Asu can't take the sting away when the family is forced from their small Tanzanian village, and Habo knows he is to blame. Seeking refuge in Mwanza, Habo and his family journey across the Serengeti. His aunt is glad to open her home until she sees Habo for the first time, and then she is only afraid. Suddenly, Habo has a new word for himself: Albino. But they hunt Albinos in Mwanza because Albino body parts are thought to bring good luck. And soon Habo is being hunted by a fearsome man with a machete. To survive, Habo must not only run, but find a way to love and accept himself.

Truevine

Truevine Book
Author : Beth Macy
Publisher : Little, Brown
Release : 2016-10-18
ISBN : 0316337560
Language : En, Es, Fr & De

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Book Description :

NATIONAL BESTSELLER The true story of two African-American brothers who were kidnapped and displayed as circus freaks, and whose mother endured a 28-year struggle to get them back. The year was 1899 and the place a sweltering tobacco farm in the Jim Crow South town of Truevine, Virginia. George and Willie Muse were two little boys born to a sharecropper family. One day a white man offered them a piece of candy, setting off events that would take them around the world and change their lives forever. Captured into the circus, the Muse brothers performed for royalty at Buckingham Palace and headlined over a dozen sold-out shows at New York's Madison Square Garden. They were global superstars in a pre-broadcast era. But the very root of their success was in the color of their skin and in the outrageous caricatures they were forced to assume: supposed cannibals, sheep-headed freaks, even "Ambassadors from Mars." Back home, their mother never accepted that they were "gone" and spent 28 years trying to get them back. Through hundreds of interviews and decades of research, Beth Macy expertly explores a central and difficult question: Where were the brothers better off? On the world stage as stars or in poverty at home? TRUEVINE is a compelling narrative rich in historical detail and rife with implications to race relations today.

Protecting the Right to Life of People Living With Albinism A Case Study of Kenya

Protecting the Right to Life of People Living With Albinism  A Case Study of Kenya Book
Author : Sylvia Waliaula
Publisher : GRIN Verlag
Release : 2019-05-17
ISBN : 3668940258
Language : En, Es, Fr & De

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Book Description :

Diploma Thesis from the year 2018 in the subject Law - Public Law / Constitutional Law / Basic Rights, grade: 64, De Montfort University Leicester (Business and Law), course: LAW, language: English, abstract: This paper examines the question, how, based on the right to life, the lifes of people with albinism can and should be protected in the case of Kenya. The Right to life is an inherent right, and both state and non-state actors have legal obligations to refrain from intentional and unlawful deprivation of life. In spite of this, the belief and practice of witchcraft are traditionally rooted in a number of African communities, this has led in a series of violations of the rights of persons living with albinism. The most barbaric of all being the evisceration of their body parts or bones, to use them in witchcraft rituals, aimed to bring success in one's life, cure diseases and also keep evil at bay. Nevertheless, this study examines the legal significance of international treaties protecting the right to life and security of persons living with albinism. An illustration of the principles established in the Convention on the Rights of Persons with disabilities and other core international norms that ordinarily protect the right to life will be demonstrated. Notably, international human rights serve as a catalyst for legal change, through furthering the promotion of fundamental human rights. In light of this observation, this study illustrates national court cases, domestic laws and practices structured by the Kenyan government that comply with its international obligations, in promoting and preserving the right to life of people with albinism.

Disability in the Global South

Disability in the Global South Book
Author : Shaun Grech,Karen Soldatic
Publisher : Springer
Release : 2016-11-08
ISBN : 3319424882
Language : En, Es, Fr & De

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Book Description :

This first-of-its kind volume spans the breadth of disability research and practice specifically focusing on the global South. Established and emerging scholars alongside advocates adopt a critical and interdisciplinary stance to probe, challenge and shift common held social understandings of disability in established discourses, epistemologies and practices, including those in prominent areas such as global health, disability studies and international development. Motivated by decolonizing approaches, contributors carefully weave the lived and embodied experiences of disabled people, families and communities through contextual, cultural, spatial, racial, economic, identity and geopolitical complexities and heterogeneities. Dispatches from Ghana, Lebanon, Sri Lanka, Cambodia, Venezuela among many others spotlight the complex uncertainties of modern geopolitics of coloniality; emergent forms of governance including neoliberal globalization, war and conflicts; the interstices of gender, race, ethnicity, space and religion; structural barriers to redistribution and realization of rights; and processes of disability representation. This handbook examines in rigorous depth, established practices and discourses in disability including those on development, rights, policies and practices, opening a space for critical debate on hegemonic and often unquestioned terrains. Highlights of the coverage include: Critical issues in conceptualizing disability across cultures, time and space The challenges of disability models, metrics and statistics Disability, poverty and livelihoods in urban and rural contexts Disability interstices with migration, race, ethnicity, ge nder and sexuality Disabilit y, religion and customary societies and practice · The UNCRPD, disability rights orientations and instrumentalitie · Redistributive systems including budgeting, cash transfer systems and programming. · Global South–North partnerships: intercultural methodologies in disability research. This much awaited handbook provides students, academics, practitioners and policymakers with an authoritative framework for critical thinking and debate about disability, while pushing theoretical and practical frontiers in unprecedented ways.

Dragonflies in Corona Times

Dragonflies in Corona Times Book
Author : Asim Mukhopadhyay
Publisher : 24by7 Publishing
Release : 2021-06-09
ISBN : 9789390537839
Language : En, Es, Fr & De

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Book Description :

The modern world that ventures to conquer Mars still lives in a cave, psychologically. Otherwise, why do the modern wallahs bother so much about the colour of their skin? "I am white. You are black?" Face facts! Pigs are both white and black and eat poop with equal gusto from a garbage van. I haven't come across any Afro-American, calling any 'true' American a carrot on two legs or a red monkey of a mountain in Haridwar, India. But George Floyds are still kneeling down to death, and Serena Willams are still booed out of the tennis court. Albinism is caused by the lack of melanin in a person's skin, eyes, ears, hair, and other body parts. Yet, normal skin Africans hate and isolate people with albinism; people even kill people with Albinism in certain countries. And most shamefully, they use their body parts to mint money or climb up the social ladder. Modern men and women should keep their pride in their pockets and read Albert Camus again and again, "One single sentence will suffice for the modern man. He reads papers and fornicates." This novel narrates the miserable conditions of the people with Albinism in their own homeland during the corona pandemic. 1. Half Man, a novel on Naxal movement (Niyogi Books, April, 2019). 2. Dance on the Graves (Woven Words, August, 2020).

Living in the Shade

Living in the Shade Book
Author : Esmail, Nahida
Publisher : Mkuki na Nyota Publishers
Release : 2018-04-12
ISBN : 9987753876
Language : En, Es, Fr & De

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Book Description :

Ivory Stars is Tanzania’s first ever all-girls football team, but what makes this team even more unique is that they are people with albinism. Disregarded by society, the team is determined to show the world that they won’t be held back. As International Albinism Awareness Day approaches, climbing Mount Kilimanjaro would defy stereotypes and prove that they are extraordinarily capable. Join Tatu, the team leader, and the Ivory Stars on their quest to reach the summit of the highest peak in Africa. Find out whether their determination will meet the challenges ahead. How will they manoeuvre through the twists and turns that lie in wait for them? What would it mean for them if they failed?

Akata Witch

Akata Witch Book
Author : Nnedi Okorafor
Publisher : Penguin
Release : 2011-04-14
ISBN : 1101513799
Language : En, Es, Fr & De

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Book Description :

Affectionately dubbed "the Nigerian Harry Potter," Akata Witch weaves together a heart-pounding tale of magic, mystery, and finding one's place in the world. Twelve-year-old Sunny lives in Nigeria, but she was born American. Her features are African, but she's albino. She's a terrific athlete, but can't go out into the sun to play soccer. There seems to be no place where she fits in. And then she discovers something amazing—she is a "free agent" with latent magical power. Soon she's part of a quartet of magic students, studying the visible and invisible, learning to change reality. But will it be enough to help them when they are asked to catch a career criminal who knows magic too? Ursula K. Le Guin and John Green are Nnedi Okorafor fans. As soon as you start reading Akata Witch, you will be, too!

Cultural Representations of Albinism in Africa

Cultural Representations of Albinism in Africa Book
Author : Charlotte Baker,Elvis Imafidon
Publisher : Unknown
Release : 2022
ISBN : 9781800791398
Language : En, Es, Fr & De

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Book Description :

"'The authors in this inspiring volume focus on the socially transformative potential narrative has to shape understandings of albinism in Africa. Scholars and activists, they reflect on how traditional beliefs, literary fiction, radio, music, photography, film and the arts can bring about social change, and also educate publics about albinism.' - Carli Coetzee, Editor, Journal of African Cultural Studies 'Highly intriguing and skillfully nuanced, this book evaluates several methods of advocacy on behalf of people with albinism from Africa, who often face stigma and physical attacks. The result is a rich commentary on what has worked, what didn't and why. This is recommended reading for anyone engaging in advocacy for any marginalized group in parts of Africa and elsewhere.' - Ikponwosa Ero, Former UN Independent Expert on the enjoyment of human rights by persons with albinism The challenges currently faced by people with albinism in many African countries are increasingly becoming a focus of African writers, storytellers, artists and filmmakers across the continent. At the same time, a growing number of advocates and activists are taking account of the power of cultural representation and turning to the arts to convey important messages about albinism - and disability more broadly - to audiences locally and internationally. This volume focuses on the power of cultural representations of albinism, taking into account their real-world effects and implications. Contributions from academics and albinism advocates range across traditional beliefs, literature, radio, newsprint, the media, film and the arts for public engagement, contending that all forms of representation have an important role to play in building sensitivity to the issues related to albinism amongst national and international audiences. Contributors draw attention to the implications of different forms of cultural representation, the potential of these different forms to open up new discursive spaces for the expression of identities and the articulation or critique of particularly difficult issues, and their potential to evoke far-reaching social change"--

Expanding Perspectives on Human Rights in Africa

Expanding Perspectives on Human Rights in Africa Book
Author : M. Raymond Izarali,Oliver Masakure,Bonny Ibhawoh
Publisher : Routledge
Release : 2019-03-14
ISBN : 1351398458
Language : En, Es, Fr & De

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Book Description :

This book draws attention to emerging issues around the rights of minorities, marginalized groups, and persons in Africa. It explores the gaps between human rights provisions and conditions, showing that although international human rights principles have been embraced in the continent, various minority groups and marginalized persons are denied such rights through criminalization and persecution. African countries have a good record of signing and ratifying international and regional rights instruments but the political will and capacity for enforcing these with respect to minorities remain weak. International contributors to the book provide new perspectives on the rights of marginalized and minority groups in different parts of Africa and the extent to which they are deprived or denied entitlement to the universality and equality articulated in law. The authors show that human rights, while having come of age as a moral ideal, has not been fully entrenched in practice towards groups such as children, indigenous populations, the mentally ill, persons with disabilities, and persons with albinism. This volume is geared toward scholars, students, human rights groups, policy makers, social workers, international organizations, and policy makers in the fields of criminology, security studies, development studies, political science, sociology, children studies, social psychology, international relations, postcolonial studies, and African Studies.

Human Rights in Africa

Human Rights in Africa Book
Author : Bonny Ibhawoh
Publisher : Cambridge University Press
Release : 2018-01-25
ISBN : 1107016312
Language : En, Es, Fr & De

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Book Description :

An interpretative history of human rights in Africa, exploring indigenous rights traditions, anti-slavery, anti-colonialism, post-colonial violations and pro-democracy movements.

Beyond The Pale

Beyond The Pale Book
Author : Emily Urquhart
Publisher : HarperCollins
Release : 2015-03-31
ISBN : 1443423580
Language : En, Es, Fr & De

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Book Description :

Like any new mother, Emily is thrilled when her first child, a daughter, is born. The baby, Sadie, is healthy and stunningly beautiful, with snow white hair and fair skin. Even the doctors and nurses can’t help a second look at this magical child. But soon a darker current begins to emerge—something is amiss. After three months of testing, Sadie is diagnosed with albinism, a rare genetic condition. Emily, a folklore scholar and an award-winning journalist, is accustomed to understanding and processing the world through stories. With Sadie at her side, Emily researches the cultural beliefs surrounding albinism and finds a curious history of outlandish tales of magic, and of good and evil reaching back through time, along with present-day atrocities. In some parts of the world, people with albinism are stalked; their condition is seen to bring luck and health as well as danger and death. Investigating the different reactions, in different cultures, to those with albinism, Emily begins to see her child as a connection between worlds. Part memoir, part cultural critique, and part genetic travelogue, Beyond the Pale is a brave, intimate investigation into the secret histories that each of us carries in our genes and an inspiring and beautiful memoir about parenting a child with a disability—and building a better future for that child.

The Genetics of African Populations in Health and Disease

The Genetics of African Populations in Health and Disease Book
Author : Muntaser E. Ibrahim,Charles N. Rotimi
Publisher : Cambridge University Press
Release : 2019-12-19
ISBN : 1107072026
Language : En, Es, Fr & De

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Book Description :

A pioneering work that focuses on the unique diversity of African genetics, offering insights into human biology and genetic approaches.

Albinism in Africa

Albinism in Africa Book
Author : Jennifer Kromberg,Prashiela Manga
Publisher : Academic Press
Release : 2018-01-02
ISBN : 9780128133163
Language : En, Es, Fr & De

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Book Description :

Albinism in Africa: Historical, Geographic, Medical, Genetic, and Psychosocial Aspects provides the first in-depth reference for understanding and treating patients of human albinism in Africa. Leading international contributors examine the historical, geographic, psychosocial, genetic and molecular considerations of importance in effectively and sensitively managing this genetic disorder. Foundational chapters covering the historical and psychosocial aspects of albinism are supplemented by discussions of the pathobiology of the disease, as well as a thorough analysis of the genetics of skin pigmentation, eye pigmentation, hair pigmentation, and incidents of skin cancer involved in the manifestations of this disorder. New prenatal diagnostics and genetic testing methods, genetic risk assessment for individuals, families, and communities, and novel genetic markers that may be used for developing new therapeutics for treating albinism are also discussed in detail. The book provides care management approaches that may be applied to instances of albinism in other regions, along with guiding principles for treating rare genetic disorders and stigmatized patient populations across the globe. Includes contributions from leading international contributors who examine the historical, geographic, psychosocial, genetic and molecular aspects of importance in sensitively managing albinism in Africa Discusses recent advances in our understanding of the pathobiology of albinism, while also offering a thorough analysis of the genetics of skin pigmentation, eye pigmentation, hair pigmentation, and rates of skin cancer Highlights new prenatal diagnostics and genetic testing methods and approaches to genetic risk assessment for individuals, families and communities

No Country For Cold Men

No Country For Cold Men Book
Author : Demilade Adeyemi
Publisher : Troubador Publishing Ltd
Release : 2017-11-21
ISBN : 1788037766
Language : En, Es, Fr & De

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Book Description :

This story takes place after the PanAfrican reform. All the countries in Africa have fused to become one massive body where the people are categorized by their social order and live accordingly. It follows the life of a boy born with albinism in Africa, where it is very dangerous to be an albino. As a baby, he was banished to the extreme of the continent where he was raised by a prison officer and his wife who were instructed to give him a life designed to keep him from finding out who he truly was, but when circumstances change, he journeys to the centre of Africa to find out who his parents are and the circumstances of his birth. Along the way he encounters for the first time hatred and discrimination from others because of the colour of his skin and the traditional beliefs about albinism. As he goes further in his journey, he discovers several truths about himself and about society around him, but at the very pinnacle of his story, it is clear that he will never be accepted.

Genomics and Health in the Developing World

Genomics and Health in the Developing World Book
Author : Dhavendra Kumar
Publisher : Oxford University Press
Release : 2012-05-11
ISBN : 019970547X
Language : En, Es, Fr & De

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Book Description :

Genomics and Health in the Developing World provides detailed and comprehensive coverage of population structures, human genomics, and genome variation--with particular emphasis on medical and health issues--in the emerging economies and countries of the developing world. With sections dedicated to fundamtals of genetics and genomics, epidemiology of human disease, biomarkers, comparative genomics, developments in translational genomic medicine, current and future health strategies related to genetic disease, and pertinent legislative and social factors, this volume highlights the importance of utilizing genetics/genomics knowledge to promote and achieve optimal health in the developing world. Grouped by geographic region, the chapters in this volume address: - Inherited disorders in the developing world, including a thorough look at genetic disorders in minority groups of every continent - The progress of diagnostic laboratory genetic testing, prenatal screening, and genetic counseling worldwide - Rising ethical and legal concerns of medical genetics in the developing world - Social, cultural, and religious issues related to genetic diseases across continents Both timely and vastly informative, this book is a unique and comprehensive resource for genetists, clinicians, and public health professionals interested in the social, ethical, economic, and legal matters associated with medical genetics in the developing world.

African Disability Rights Yearbook Volume 7 2019

African Disability Rights Yearbook Volume 7 2019 Book
Author : Anonim
Publisher : Pretoria University Law Press
Release : 2019-01-01
ISBN : 0987650XXX
Language : En, Es, Fr & De

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Book Description :

African Disability Rights Yearbook Volume 7 2019 2019 ISSN: 2311-8970 Pages: 279 Print version: Available Electronic version: Free PDF available About the publication The African Disability Rights Yearbook aims to advance disability scholarship. Coming in the wake of the United Nations Convention on the Rights of Persons with Disabilities, it is the first peer-reviewed journal to focus exclusively on disability as human rights on the African continent. It provides an annual forum for scholarly analysis on issues pertaining to the human rights of persons with disabilities. It is also a source for country-based reports as well as commentaries on recent developments in the field of disability rights in the African region. Table of Contents EDITORIAL SECTION A: ARTICLES The implications of Article 12 of the Convention on the Rights of Persons with Disabilities for the legal capacity of persons with psychosocial and intellectual disabilities in Ethiopia Merga Yadesa Dibaba Human rights and access to health care for persons with albinism in Africa Ebenezer Durojaye and Satang Nabaneh Conflicting discourses on conceptualising children with disabilities in Africa Shimelis Tsegaye Tesemma and Susanna Abigaêl Coetzee Right to self-representation for people with mental disabilities in Kenya’s courts Paul Juma The place of sign language in the inclusive education of deaf learners in Zimbabwe amid CRPD (mis)interpretation Martin Musengi Left in the periphery: An appraisal of voting rights for persons with disabilities in Zimbabwe Nkosana Maphosa, CG Moyo and B Moyo SECTION B: COUNTRY REPORTS Tchad Serge Marcellin Tengho Mali Marianne Séverin Burundi Gerard Emmanuel Kamdem Kamga Republic of Congo Marianne Séverin and Chretien Fontcha South Sudan Innocentia Mgijima-Konopi, Theophilus M Odaudu and Reshoketswe Mapokgole SECTION C: REGIONAL DEVELOPMENTS Leveraging the international human rights system to advance local change for South African women with disabilities Anastasia Holoboff & Suzannah Phillips The right to an adequate standard of living in the Protocol to the African Charter on Human and Peoples’ Rights on the Rights of Persons with Disabilities Africa Yvette Basson BOOK REVIEW Simon Foley: Intellectual disability and the right to a sexual life (2019) Charles Ngwena

The Bones and Resilience of a Person with Albinism

The Bones and Resilience of a Person with Albinism Book
Author : Cora Butler-Jones, Ph.D.
Publisher : Tate Publishing Company
Release : 2015-03-17
ISBN : 9781634187749
Language : En, Es, Fr & De

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Book Description :

In Tanzania, there have been accounts of albinos who have been tormented by their neighbors and friends due to superstition, the cries in the night when yet another person with albinism has been taken, the political reaction---local and international; but the arrival of an NGO Under the Same Sun determined to save them, and the amazing survival of these people with albinism has been shared around the world. Why is the climate and the people of this area so damaging to the survival of a person with albinism? What has led to such a notable level of resilience and a civil rights movement among them? This is all reviewed in this book.

Nwelezelanga

Nwelezelanga Book
Author : Unathi Magubeni
Publisher : Blackbird Books
Release : 2017-03-30
ISBN : 1928337260
Language : En, Es, Fr & De

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Book Description :

With a rich vocabulary that is poetic and uncluttered, this debut novel is nothing short of a masterpiece. It is both a well-written and philosophical book. The story begins with Nokwakha giving birth at her village home, and when it is discovered that the child is an albino the midwife convinces her that it is a curse and she should snuff the life out of it before it takes another breath. The dreadful deed is done by the river, but the 'all-knowing one' has other plans ... With an assured voice and eloquent prose, Magubeni invites us into the life of this extraordinary being, Nwelezelanga, the child who should not have been, contrasting the themes of darkness and light, embracing the unknown and unseen in a way no one else has - or can.